ILADS Member Engages the WHO to Include Lyme Disease in Revision of Health Code

The Ad Hoc Committee for Health Equity in ICD11 Borreliosis Codes (or Ad Hoc Committee) is an international, all voluntary, professional committee formed to improve the ICD codes for Lyme and Relapsing Fever borreliosis and address the human rights violations generated by inadequate codes.

In 2017, members of the Ad Hoc Committee met with Dainius Pūras, the United Nations (UN) Special Rapporteur on the right to health and Dr. Shekhar Saxena, the senior WHO official responsible for addressing dementia to discuss their findings from the Report, UPDATING ICD11 Borreliosis Diagnostic Codes, Edition One (March 29, 2017) and entered many potentially fatal complications from Lyme borreliosis into the WHO ICD11 Beta Platform. Many persons in the UN system have friends and family devastated by this disease.

The ICD11 codes now recognize: 1C1G.2 Congenital Lyme borreliosis; 6D85.Y Dementia due to Lyme Disease (Dementia due to other specified diseases classified elsewhere); 8A45.0Y Central…

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